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journal patient reported outcomes

Collection and use of EQ-5D for follow-up, decision-making, and quality improvement in health care - the case of the Swedish National Quality Registries 16. September 2020
The Swedish National Quality Registries (NQRs) contain individual-level health care data for specific patient populations, or patients receiving specific interventions. Approximately 90% of the 105 Swedish NQR...
Olivia Ernstsson, Mathieu F. Janssen and Emelie Heintz
The validity and reliability of the patient enablement instrument (PEI) after GP appointments in Finnish health care centres 16. September 2020
The aim of this study was to assess the validity and reliability of the Patient Enablement Instrument (PEI) in Finnish health care centre patients. A pilot study was conducted to assess the content validity of...
Elina Tolvanen, Tuomas H. Koskela, Mika Helminen and Elise Kosunen
Core outcome sets in cancer and their approaches to identifying and selecting patient-reported outcome measures: a systematic review 15. September 2020
Issues arising from a lack of outcome standardisation in health research may be addressed by the use of core outcome sets (COS), which represent agreed-upon recommendations regarding what outcomes should be me...
Imogen Ramsey, Marion Eckert, Amanda D. Hutchinson, Julie Marker and Nadia Corsini
“‘You lose your hair, what’s the big deal?’ I was so embarrassed, I was so self-conscious, I was so depressed:” a qualitative interview study to understand the psychosocial burden of alopecia areata 11. September 2020
Alopecia areata (AA) is characterized by hair loss that can affect the scalp and body. This study describes the psychosocial burden of AA.
Natalie V. J. Aldhouse, Helen Kitchen, Sarah Knight, Jake Macey, Fabio P. Nunes, Yves Dutronc, Natasha Mesinkovska, Justin M. Ko, Brett A. King and Kathleen W. Wyrwich
Qualitative research to explore the symptoms and impacts experienced by children with ulcerative colitis 7. September 2020
Ulcerative Colitis (UC) is a chronic gastrointestinal disease that often presents during one’s most productive years and is characterized by colon inflammation. Key symptoms and impacts in adults are well-know...
Jason A. Randall, Aiste Guobyte, Laure Delbecque, Louise Newton, Tara Symonds and Theresa Hunter

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