Explanation of results / Dashboard views
Send-outs and scheduling of PROMs/PREMs
General information
General principles of the EQK-PROMs project
- Only completed questionnaires are included
- Results are grouped into standardized time periods:
- 1–4 weeks before intervention
- 6 weeks after intervention
- 12 weeks after intervention
- 6 months after intervention
- 12 months after intervention
- If no data is available for a timepoint, it is not shown
- Charts update automatically as new patient questionnaires are submitted
EQ-5D-5L (Quality of Life measurement)
EQ-5D-5L overview (utility index)
The EQ-5D-5L is a validated patient-reported outcome measure used to assess overall health-related quality of life. Scores shown in the dashboard follow the official EQ-5D-5L scoring methodology, using the German (DE) value set for weighting. Value sets can be different from region to region depending on the local studies. For Switzerland, there is currently no value set available.
What is measured?
EQ-5D-5L includes five quality of life health dimensions:
- Mobility
- Self-care
- Usual activities
- Pain / discomfort
- Anxiety / depression
Patients select one level per dimension on a 5-level scale, ranging from:
- No problems
to - Extreme problems
This creates a health state (e.g., 2-1-3-2-2) describing the patient’s current health.
How the utility score is calculated (German value set)
To make EQ-5D-5L results comparable and interpretable, the five dimension answers are converted into a single utility value.
The calculation follows this principle:
- Each selected level is assigned a weight (penalty) based on the German EQ-5D-5L value set
- More severe problems → larger penalty
- The penalties are summed across the five dimensions
- The utility value is calculated as:
Utility value = 1 − (sum of weighted penalties)
This means:
- patients with fewer / milder problems have a utility closer to 1
- patients with more / severe problems have a lower utility score
EQ-5D-5L - Questions of PROMs questionnaire
For each dimension is one eligible answer to give
- I have no problems in walking about
- I have slight problems in walking about
- I have moderate problems in walking about
- I have severe problems in walking about
- I am unable to walk about
- I have no problems washing or dressing myself
- I have slight problems washing or dressing myself
- I have moderate problems washing or dressing myself
- I have severe problems washing or dressing myself
- I am unable to wash or dress myself
- I have no problems doing my usual activities
- I have slight problems doing my usual activities
- I have moderate problems doing my usual activities
- I have severe problems doing my usual activities
- I am unable to do my usual activities
- I have no pain or discomfort
- I have slight pain or discomfort
- I have moderate pain or discomfort
- I have severe pain or discomfort
- I have extreme pain or discomfort
- I am not anxious or depressed
- I am slightly anxious or depressed
- I am moderately anxious or depressed
- I am severely anxious or depressed
- I am extremely anxious or depressed
EQ-5D-5L - Graph / Dashboard
How to read and interpret the PROMs charts
The charts shown in the dashboard are based on patient-reported outcome measures (PROMs).
They reflect how patients perceive their health, symptoms, and treatment outcome over time from an individual patient perspective.
All charts are displayed relative to the intervention date, allowing comparison before and after treatment.
Chart Dashboard view of the 5 quality of life dimensions:
Score scale
Utility values typically range from:
- 1 = perfect health
- 0 = health state considered equivalent to death
- < 0.0 = health state perceived worse than death (possible depending on the value set)
How to read the chart
- X-axis: 5-dimensions answers of five time-points of send-outs relative to intervention date
- Y-axis: Utility score 0-1 (higher = better health status)
- Bars: Show utility values across the defined timepoints
- In the HCP dashboard, each value shown represents the mean utility score across all patients who completed the EQ-5D-5L at that time-point.
(hint1: mouse-over of bars shows you the exact values and number of patients included – if you are not just on an individual patient dashboard)
(hint2: you are able to click on the color dots of the 5 dimensions (title) and therefore eliminate the results)
(hint3: click on the information button (i) and you directly come to this page)
How to interpret changes over time
- Higher utility values indicate better overall quality of life
- Increasing values over time suggest recovery or treatment success
- Stable or declining values may indicate persistent limitations or reduced perceived health
Important notes
- EQ-5D-5L is a patient-reported outcome measure (PROM)
- Scoring uses the German EQ-5D-5L value set (country-specific weighting)
- Only completed questionnaires are included
- Results update automatically real-time as new patient data is submitted
EQ-VAS self-rated Health (scale)
What this chart shows
EQ-VAS reflects the patient’s overall self-rated health today.
Patients rate their health on a visual scale from:
- 0 = worst imaginable health
- 100 = best imaginable health
How the score is calculated
- The patient selects a number between 0 and 100
- The HCP dashboard shows the mean EQ-VAS score across patients
How to interpret it
- Higher scores indicate better perceived health
- Particularly useful as a global patient-centred outcome
- Often improves steadily after intervention
EQ-VAS question (scale)
Scale from 0-100 – either the patient moves the scale and sees the number she/he has chosen or they directly indicate the number
EQ-VAS Graph / Dashboard
The EQ-VAS graph shows the scale results ranging from 0-100 over 5 time points.
Joint specific pain
What this chart shows
This chart reflects pain in the treated joint as reported by patients.
Scale:
- 0 = no pain
- 10 = worst imaginable pain
How the score is calculated
- Patients select one numeric value
- Mean pain score is calculated per timepoint across all patients
How to interpret it
- Lower scores indicate less pain
- Declining values over time reflect pain reduction
- Can be used to monitor recovery speed and residual pain
Joint specific pain question
Please select the number that corresponds to the intensity of pain in your knee (hip, shoulder) joint.
0 (zero) means no pain, and 10 means the worst pain imaginable.
How severe was your joint-specific pain last week?
Joint specific satisfaction
What is measured
Patients answer the question about their satisfaction with the treated joint using one of the following options:
- Very dissatisfied
- Somewhat dissatisfied
- Neither satisfied nor dissatisfied
- Somewhat satisfied
- Very satisfied
How the chart is calculated
For each time-point:
- All completed patient responses are collected
- Responses are grouped by satisfaction category
- The percentage of patients in each category is calculated
Only patients who submitted the questionnaire at that timepoint are included.
The total distribution per time-point always equals 100%.
How to read the chart
- X-axis: Time relative to intervention
(1–4 weeks before, 6 weeks after, 12 weeks after, 6 months after, 12 months after) - Y-axis: Percentage of patients (0–100%)
- Colors: Each color represents one satisfaction category, shown in the legend
- Bars: Show how patient satisfaction is distributed across categories at each timepoint
How to interpret the results
- An increasing proportion of “Somewhat satisfied” and “Very satisfied” responses over time indicates improving patient-perceived outcomes.
- A decreasing proportion of dissatisfied responses suggests successful recovery and treatment effect.
- A high share of neutral responses may indicate partial improvement or unmet expectations.
Joint specific satisfaction question / answers
How would you feel if you had to live with your current knee joint symptoms for the rest of your life?
- very satisfied
- somewhat satisfied
- neither satisfied nor dissatisfied
- somewhat dissatisfied
- very dissatisfied
Joint specific satisfaction Graph / Dashboard
The combination of EQ-5D-5L, 2 joint specific questions and the educational grade of the patient covers the official SIRIS-PROMs-questionnaire for Knee and HIP (Swiss-RDL registry, ANQ) and the Swiss Excellence Label of the Swiss orthopedic association.
Links:
HOOS-12
The HOOS-12 questionnaire is a validated patient-reported outcome measure used to assess hip-related symptoms, function, and quality of life.
What is measured
HOOS-12 consists of 12 questions, grouped into three clinically meaningful domains:
- Pain (4 questions): hip pain during movement and daily activities
- Function (4 questions): difficulty performing everyday and functional tasks
- Quality of Life (QoL) (4 questions): hip-related impact on daily life and well-being
Each domain reflects a different aspect of the patient’s hip health.
How patients answer
Each question is answered on a 5-point scale:
- 0 = no problems
- 1 = mild problems
- 2 = moderate problems
- 3 = severe problems
- 4 = extreme problems
Higher values indicate more severe problems.
How the domain scores are calculated and transformed (0–100)
For each domain (Pain, Function, QoL), the system:
- Adds the four answers within that domain to produce a raw domain score
- Range: 0 (best) to 16 (worst)
- Transforms the raw score to a standardized 0–100 scale using the official HOOS method
- This converts “problem severity” into an intuitive “outcome score”
After transformation:
- 100 = no problems / best possible outcome
- 0 = extreme problems / worst possible outcome
So although patients answer using “problem levels”, the displayed score is reversed for easier interpretation:
Higher score = better hip status
Practical example
If a patient answers the 4 Function questions with: 1, 2, 3, 1
- Raw Function score = 7 out of 16
- Transformed Function score ≈ 56/100
Interpretation: moderate functional limitation (not severe, not fully recovered).
How to read the chart
At each relative timepoint, the chart displays:
- Pain score
- Function score
- Quality of Life score
Each bar represents the mean score across all patients who completed HOOS-12 at that timepoint.
Higher bars indicate better hip-related outcomes.
How to interpret changes over time
- Increasing scores: improvement in symptoms/function after intervention
- Stable scores: unchanged status
- Decreasing scores: worsening symptoms or delayed recovery
Comparing domains helps identify whether limitations are mainly driven by pain, function, or quality of life.
Important notes
- HOOS-12 is a patient-reported outcome measure (PROM)
- Scores reflect the patient’s own perception of hip health
- Only completed questionnaires are included
- Results update automatically as new patient data is submitted
HOOS-12 questions
In this section, you will be asked about your assessment of your hip. Please answer each question by selecting the appropriate box. If you are uncertain about a question, please provide the best possible answer.
Pain
1. How often do you experience hip pain?
- Never
- Monthly
- Weekly
- Daily
- Always
What amount of hip pain have you experienced the last week during the following activities?
2. Walking on a flat surface
- None
- Mild
- Moderate
- Severe
- Extreme
3. Going up or down stairs
- None
- Mild
- Moderate
- Severe
- Extreme
4. Sitting or lying
- None
- Mild
- Moderate
- Severe
- Extreme
Function, daily living
The following questions concern your physical function. By this we mean your ability to move around and to look after yourself. For each of the following activities please indicate the degree of difficulty you have experienced in the last week due to your hip.
5. Rising from sitting
- None
- Mild
- Moderate
- Severe
- Extreme
6. Standing
- None
- Mild
- Moderate
- Severe
- Extreme
7. Getting in/out of a car
- None
- Mild
- Moderate
- Severe
- Extreme
8. Walking on an uneven surface
- None
- Mild
- Moderate
- Severe
- Extreme
Quality of Life
9. How often are you aware of your hip problem?
- Never
- Monthly
- Weekly
- Daily
- Constantly
10. Have you modified your life style to avoid potentially damaging activities to your hip?
- Not at all
- Mildly
- Moderately
- Severely
- Totally
11. How much are you troubled with lack of confidence in your hip?
- Not at all
- Mildly
- Moderately
- Severely
- Totally
12. In general, how much difficulty do you have with your hip?
- None
- Mild
- Moderate
- Severe
- Extreme
HOOS-12 Graph / Dashboard
KOOS-12
The KOOS-12 questionnaire is a validated patient-reported outcome measure used to assess knee-related symptoms, function, and quality of life.
What is measured
KOOS-12 consists of 12 questions, grouped into three clinically meaningful domains:
- Pain (4 questions): knee pain during movement and daily activities
- Function (4 questions): difficulty performing everyday and functional tasks
- Quality of Life (QoL) (4 questions): knee-related impact on daily life and well-being
Each domain reflects a different aspect of the patient’s knee health.
How patients answer
Each question is answered on a 5-point scale:
- 0 = no problems
- 1 = mild problems
- 2 = moderate problems
- 3 = severe problems
- 4 = extreme problems
Higher values indicate more severe problems.
How the domain scores are calculated and transformed (0–100)
For each domain (Pain, Function, QoL), the system:
- Adds the four answers within that domain to produce a raw domain score
- Range: 0 (best) to 16 (worst)
- Transforms the raw score to a standardized 0–100 scale using the official KOOS method
- This converts “problem severity” into an intuitive “outcome score”
After transformation:
- 100 = no problems / best possible outcome
- 0 = extreme problems / worst possible outcome
So although patients answer using “problem levels”, the displayed score is reversed for easier interpretation:
Higher score = better knee status
Practical example
If a patient answers the 4 Function questions with: 1, 2, 3, 1
- Raw Function score = 7 out of 16
- Transformed Function score ≈ 56/100
Interpretation: moderate functional limitation (not severe, not fully recovered).
How to read the chart
At each relative timepoint, the chart displays:
- Pain score
- Function score
- Quality of Life score
Each bar represents the mean score across all patients who completed KOOS-12 at that timepoint.
Higher bars indicate better knee-related outcomes.
How to interpret changes over time
- Increasing scores: improvement in symptoms/function after intervention
- Stable scores: unchanged status
- Decreasing scores: worsening symptoms or delayed recovery
Comparing domains helps identify whether limitations are mainly driven by pain, function, or quality of life.
Important notes
- KOOS-12 is a patient-reported outcome measure (PROM)
- Scores reflect the patient’s own perception of knee health
- Only completed questionnaires are included
- Results update automatically as new patient data is submitted
KOOS-12 questions
In this section, you will be asked about your assessment of your knee. Please answer each question by selecting the appropriate box. If you are uncertain about a question, please provide the best possible answer.
Pain
1. How often do you experience knee pain?
- Never
- Monthly
- Weekly
- Daily
- Always
What amount of knee pain have you experienced the last week during the following activities?
2. Walking on a flat surface
- None
- Mild
- Moderate
- Severe
- Extreme
3. Going up or down stairs
- None
- Mild
- Moderate
- Severe
- Extreme
4. Sitting or lying
- None
- Mild
- Moderate
- Severe
- Extreme
Function, daily living
The following questions concern your physical function. By this we mean your ability to move around and to look after yourself. For each of the following activities please indicate the degree of difficulty you have experienced in the last week due to your knee.
5. Rising from sitting
- None
- Mild
- Moderate
- Severe
- Extreme
6. Standing
- None
- Mild
- Moderate
- Severe
- Extreme
7. Getting in/out of a car
- None
- Mild
- Moderate
- Severe
- Extreme
8. Walking on an uneven surface
- None
- Mild
- Moderate
- Severe
- Extreme
Quality of Life
9. How often are you aware of your knee problem?
- Never
- Monthly
- Weekly
- Daily
- Constantly
10. Have you modified your life style to avoid potentially damaging activities to your knee?
- Not at all
- Mildly
- Moderately
- Severely
- Totally
11. How much are you troubled with lack of confidence in your knee?
- Not at all
- Mildly
- Moderately
- Severely
- Totally
12. In general, how much difficulty do you have with your knee?
- None
- Mild
- Moderate
- Severe
- Extreme
KOOS-12 Graph / Dashboard
NORPEQ - Patient Experience (PREMs)
What this chart shows
This chart shows the average (mean) patient experience score across all patients who completed the NORPEQ questionnaire.
What is measured
NORPEQ (Norwegian Patient Experiences Questionnaire) reflects how patients experienced their care, including aspects such as:
- Information and communication
- Involvement in care
- Overall satisfaction with treatment and services
The result is expressed as a single overall score.
Score scale
- 0 = worst possible patient experience
- 100 = best possible patient experience
Higher values indicate a more positive patient experience.
How the score is calculated
- Each patient’s NORPEQ questionnaire is scored individually
- All completed patient scores are collected
- The system calculates the mean (average) score across all responding patients
Only patients who submitted the questionnaire are included.
Patients without a response at that timepoint are excluded from the calculation.
How to read the chart
- The number in the center shows the mean NORPEQ score
- The gauge range (0–100) represents the full scoring scale
- The label above the chart indicates how many patient responses were included
(e.g. “Overall score from 2 patients”)
How to interpret the result
- Higher scores indicate better overall patient experience with care
- Lower scores may point to opportunities for improvement in communication, coordination, or patient support
NORPEQ complements clinical outcome measures by providing a patient-experience perspective rather than a clinical one.
Most important literature for NORPEQ:
NORPEQ Graph / Dashboard
NORPEQ questions
Questions about your hospital experience
We would like to know how you experienced your hospital stay. Your feedback helps us continuously improve the quality of our care and services.
Please answer each question from your personal perspective. There are no right or wrong answers – what matters is what you experienced. If you are uncertain or if something does not fit exactly, choose the answer that best applies to you. Your information will be treated confidentially and will only be evaluated in summarized form – individual persons cannot be identified.
1. Did the doctors talk to you in a way you could understand?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
2. Do you have confidence in the doctors’ medical competence?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
3. Do you have confidence in the nursing staff’s medical competence?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
4. Did you experience the nursing staff showed concern for you?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
5. Did you experience that the doctors and nursing staff were interested in your description of your own situation?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
6. Were you given the information you thought were necessary about how tests and examinations would be conducted?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
7. Overall, was the treatment and care you received at the hospital satisfactory?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
8. Do you believe you were in any way given the wrong treatment (as far as you are able to judge)?
- Not at all
- To a small extent
- To some extent
- To a large extent
- To a very large extent
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